Specialized tools are needed when searching the web for rare disease diagnoses

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Specialized tools are needed when searching the web for rare disease diagnoses
Authors: Radu Drăgușin, Paula Petcu, Christina Lioma, Birger Larsen, Henrik L. Jorgensen, Ingemar J. Cox, Lars Kai Hansen, Peter Ingwersen, Ole Winther
Citation: Rare diseases (Austin, Tex.) 1 : e25001. 2013
Database(s): Google Scholar cites PubMed (PMID/25002998)
DOI: 10.4161/rdis.25001.
PMCID:3932942
Link(s): http://www.tandfonline.com/doi/pdf/10.4161/rdis.25001
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Specialized tools are needed when searching the web for rare disease diagnoses is a 4-page description of the FindZebra system.

The article is an addendum to FindZebra: a search engine for rare diseases.

[edit] Method

The Indri[1] search engine is used and compared to the Google search engine.

Roughly 33'400 documents are considered.

56 test queries are made: 5 by physician Henrik L. Jørgensen, 25 "case stories published in the Orphanet Journal of Rare Diseases" and 26 test queries from Googling for a diagnosis - use of Google as a diagnostic aid: internet based study.

This evaluation seems to be the same as in FindZebra: a search engine for rare diseases.

[edit] Related papers

  1. FindZebra: a search engine for rare diseases
  2. FindZebra - the search engine for difficult medical cases

[edit] References

  1. Indri: A language model-based search engine for complex queries
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